When Hannah Lovaglio’s children were born, she didn’t think twice about the newborn health screening they received in the hospital. The routine test uses a few drops of blood from a heel prick to test for dozens of potentially fatal or disabling genetic diseases.
“I assumed that this was for my child’s best interest and for the best interest of public health,” says Lovaglio, a pastor in New Jersey. What she didn’t know was that after testing was completed, the leftover blood would be stored by the state for 23 years and could be used for purposes beyond medical testing. In a court case that became public last year, New
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