Making Genomic Testing Available To All—And Safeguarding People’s Control Of Their Health Data

Sharon Terry is President and CEO of Genetic Alliance, a leader in transforming health systems by being responsive to the real needs of people in their quest for health. Here, we talk about keeping people in charge of their health data, partnering with scientists to accelerate medical research, and what affordable whole genome sequencing can mean for children and families worldwide.

Konstanze Frischen: Sharon, it’s an exciting time for your work: Genetic Alliance recently received a $120 million in-kind donation of instruments and reagents from Illumina, cloud storage from AWS, and a data management platform from LunaPBC, to bring clinical whole genome sequencing to under-resourced families across

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